NAVIGATING A MASTECTOMY
RESOURCES & ADVOCATES
Knowing where to look for breast health advocates and information is crucial in order to make an informed decision.
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On Instagram look up:
@the_breasties (non-profit organization made up of survivors & previvors)
@forthebreastofus
@airsfoundation
@anaonointimates (for post-mastectomy bras and supplies)
@drannepeled (breast surgeon)
@starstrickensf (breast health advocate)
@theprevivor (breast health advocate)
@mastheadpink (post-mastectomy supplies)
@allynrose (breast health advocate)
@melanielynnpenndesign (breast health advocate/artist)
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On Facebook look up:
The Breasties
The Breast Cancer Research Foundation
The Breast Cancer Site
Susan G. Komen (non-profit organization)
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Other Online Resources:
https://www.facs.org/quality-programs/napbc/about/advocacy-orgs
https://www.mayoclinic.org/tests-procedures/mastectomy/about/pac-20394670
https://www.breastcancer.org/treatment/surgery/mastectomy/what_is
https://www.breastcancer.org/treatment/surgery/mastectomy/expectations
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HELPFUL Articles
What is a (pre) vivor? 5 Things you need to know. By Krystal Barter. October 09, 2019. https://pinkhope.org.au/what-is-a-previvor-5-things-you-need-to-know/
What to expect: Fine Needle Aspiration. https://www.fightlikeagirlclub.com/what-to-expect-fine-needle-aspiration/
What is Breast Cancer? Symptoms, Causes, Diagnosis, Treatment, and Prevention. By Tara Haelle. August 31, 2020. https://www.everydayhealth.com/breast-cancer/guide/
Breast Cancer Risk Factors You Cannot Change. https://www.cancer.org/cancer/breast-cancer/risk-and-prevention/breast-cancer-risk-factors-you-cannot-change.html
POST MASTECTOMY MUST-HAVES
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A notebook (for any questions you may not remember to ask or notes you may want to jot down)
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An am/pm pill organizer (found on amazon-click image)
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Full Body Pillow (this exact one was a life saver for me after my pre & post mastectomy breast surgeries)
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A lot of gauze pads
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Post-Mastectomy Seatbelt Cushion
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Ice packs to fit inside bras
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A belt to hold post-op drains for walking/showering/sleeping
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The Axillapilla by Masthead were absolutely lifesavers for me (I bought 2) ,however, Amazon has a cheaper option available as well
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Button up/Zip up Tops
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Post-Mastectomy Bras
Below are a couple of companies that make great post-mastectomy bras. Personally my favorites are from Athlete & Prairie but they are all great companies that make great post mastectomy bras.​
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Masthead
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Athleta
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Anaono
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Prairie